Thursday, April 4, 2013

An NF update

To all my readers, I have an updated post about NF (also know as Neurofibromatosis- check out m page on it)
 This is a post about the current issue in congress with funding. I am asking for your support to help fund research for NF.

Here is a link that will take you to a letter( and please do it today, I found out there is only one day left to take care of this)

http://www.nfnetwork.org/be-an-nf-activist/advocacy-action
http://www.nfnetwork.org/
http://www.ctf.org/How-You-Can-Help/Advocacy.html

as well as please check out your this face book page:

https://www.facebook.com/pages/Neurofibromatosis-Network/9766902412
https://www.facebook.com/childrenstmrfdn?fref=ts

Please, please help.
Ciao,

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